The Reality of Living with Misophonia

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Since I do not fully grasp the horrors of misphonia, I am quoting the following explanation I have taken from WebMD. WebMD: Misphonia

 

Do nails on a chalkboard make you cringe? Imagine if a sound could make you panic or fly into a rage.

 

This is the case with misophonia — a strong dislike or hatred of specific sounds.

 

What Happens?

Misophonia, also known as selective sound sensitivity syndrome, starts with a trigger. It’s often an oral sound — the noise someone makes when they eat, breathe, chew, yawn, or whistle. Sometimes a small repetitive motion is the cause — someone fidgets, jostles you, or wiggles their foot.

 

If you have a mild reaction, you might feel:

 

  • Anxious

  • Uncomfortable

  • The urge to flee

  • Disgust

 

If your response is more severe, the sound in question might cause:

 

  • Rage

  • Anger

  • Hatred

  • Panic

  • Fear

  • Emotional distress

  • A desire to kill or stop whatever is making the noise

  • Skin crawling

  • Suicidal thoughts

 

The disease can put a cramp in your social life. You might avoid restaurants or eat separately from your spouse, family, or roommates. Or worse, you could act on what you feel. You might attack the person who’s making the sound — physical or verbally — cry, or run away from the situation.

 

Over time, you may respond to visual triggers, too. Seeing someone get ready to eat or put something in their mouth might set you off.

 

A friend of mine, Shaylynn Hayes, lives with this disorder. Not only do sounds and movement cause her to panic and go into a rage, but simple things like reading a text from a phone that puts double spaces after periods between sentences are too difficult for her to read.

 

One of the sad things about misphonia is that not only does it make life hell for millions, it is under-researched and the media and the public have a tendency to make fun of those who live with it.

 

Shaylynn is at the forefront of the attempt to raise awareness of misphonia, spearheading a website dedicated to finding help for those like herself who live in a prison of sound and action.

 

Shaylynn has also written books on her life with misophonia, Full of Sound and Fury: Suffering with Misophonia.

 

Today she asked me to write a post highlighting her disorder and a post she wrote recently on the website Misophonia International.

 

The article is titled, Dear White People, Misophonia is Not a Joke

 

 

 

Please, take time to read her post and help stamp out the stigmatizing image that the media has tried to perpetuate.

 

 

shaylyn 

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Thank you for commenting! Shirley